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Post by condo3e on Feb 5, 2019 21:53:32 GMT
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Post by lcd on Feb 5, 2019 22:10:18 GMT
Thanks for sharing condo3e. I remember the company not being too excited about supporting the Right to Try law, so this was the only patient given the treatment, correct? This story should get picked up by the media to discuss the costs and benefits of the law one year later.
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Post by condo3e on Feb 6, 2019 4:35:29 GMT
Phoenix—Former U.S. Navy pilot Matt Bellina lives with amyotrophic lateral sclerosis (ALS), and since the time of his diagnosis in 2014, he had exhausted the treatment options available to him. But he successfully fought for the right to try investigational treatments so that he and others in his situation could have hope. Today, the Goldwater Institute is pleased to learn that Bellina is undergoing treatment for ALS under the federal Right to Try law. The treatment, NurOwn, is currently in Phase 3 trials. In a Facebook post today, Bellina announced that he began the investigational treatment one month ago. Since his treatment began, he has experienced “increased core strength and coordination,” which now allows him to pull himself up to standing. Additionally, he has seen “subjective improvement” in his speech and swallowing. “I have been given a gift,” Bellina wrote of his treatment. “Because this is an investigational therapy we don’t know what tomorrow will bring but for now we are feeling incredibly blessed,” he continued goldwaterinstitute.org/article/former-navy-pilot-with-als-receives-treatment-under-federal-right-to-try-law/ |
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Post by condo3e on Feb 13, 2019 22:47:40 GMT
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Post by condo3e on Feb 15, 2019 0:55:55 GMT
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